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Gemini54
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24-06-2013, 08:20 PM
Hi Rosebud,

I was talking to the nurse after I sent the post,and she told me an interesting story,Her daughter is a sister at a hospital,they receive papers or fact sheets from various sources,she had a baby which I think is over 2 years,but because of the various info she didnt want it to the MMR jab,because it could be a factor that the child could develop attention deficit,she was called to management,and was told that she should be showing an example,her mum agrees with the hospital,as she feels attention defic is prevalent due to nurture not because of this jab.So even the professionals are not always sure what is right,and with the information that you have given,and the age of the people involved I would say that the drugs should be reviewed,but I am not sure if pain management is the best course,not for me do not like all this clappy clappy stuff,oh you have done well this week,did explain to the nurse,she hadnt realised my drugs had been changed only about 3 months ago,so is going to leave it for a further 3 months then look at the situation again.Thankyou again Rosebud.Gemini54
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Rosebud77
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25-06-2013, 06:13 AM
Originally Posted by Gemini54 View Post
Hi Rosebud,

I was talking to the nurse after I sent the post,and she told me an interesting story,Her daughter is a sister at a hospital,they receive papers or fact sheets from various sources,she had a baby which I think is over 2 years,but because of the various info she didnt want it to the MMR jab,because it could be a factor that the child could develop attention deficit,she was called to management,and was told that she should be showing an example,her mum agrees with the hospital,as she feels attention defic is prevalent due to nurture not because of this jab.So even the professionals are not always sure what is right,and with the information that you have given,and the age of the people involved I would say that the drugs should be reviewed,but I am not sure if pain management is the best course,not for me do not like all this clappy clappy stuff,oh you have done well this week,did explain to the nurse,she hadnt realised my drugs had been changed only about 3 months ago,so is going to leave it for a further 3 months then look at the situation again.Thankyou again Rosebud.Gemini54
Shaking my head here; I quit boards ie as the drs on the board there were abysmally rude to anyone who did not go along with THEIR ideas eg VACCINATE EVERYONE.

Be thankful this is not the US as they disallow kids schioool if they are not vaccinated

They say categorically that no there is no risk with the MMR and the dr who said there was got disbarred but I am not convinced . Even some vets are splitting vaccines to avoid bombarding the immune system.

I will not touch live vaccines as I have immune system damage with he ME which moist drs do not believe exists of course

I was shocked to find they are having these meetings as pain management is such an individual thing

Narcotics I can have all kinds of mental side effects so yes you are right.

Good luck to thee! Blessings and peace...
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Gemini54
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25-06-2013, 08:27 AM
Originally Posted by Rosebud77 View Post
Shaking my head here; I quit boards ie as the drs on the board there were abysmally rude to anyone who did not go along with THEIR ideas eg VACCINATE EVERYONE.

Be thankful this is not the US as they disallow kids schioool if they are not vaccinated

They say categorically that no there is no risk with the MMR and the dr who said there was got disbarred but I am not convinced . Even some vets are splitting vaccines to avoid bombarding the immune system.

I will not touch live vaccines as I have immune system damage with he ME which moist drs do not believe exists of course

I was shocked to find they are having these meetings as pain management is such an individual thing

Narcotics I can have all kinds of mental side effects so yes you are right.

Good luck to thee! Blessings and peace...
Hi
Welcome to the club of rare and the inexplicable, after a fight of not wanting to be labelled as brian damaged,I have now MS,which like yours doesnt take any prisoners,mine is fatigue really bad pain and loss of vision,I have a really good friend who got so fed up of people even the professionals saying oh you have the remainder of yuppy flu,you then feel that people think you are ma-lingering,I have seen my friend when she was dead on her feet,and all a tremble because she was so tired,she says she often feels like the dormouse in Alice where it suddenly wakes up,and it has lost the plot.Does Ireland treat the condition with better understanding.Gemini54
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Rosebud77
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25-06-2013, 06:51 PM
Originally Posted by Gemini54 View Post
Hi
Welcome to the club of rare and the inexplicable, after a fight of not wanting to be labelled as brian damaged,I have now MS,which like yours doesnt take any prisoners,mine is fatigue really bad pain and loss of vision,I have a really good friend who got so fed up of people even the professionals saying oh you have the remainder of yuppy flu,you then feel that people think you are ma-lingering,I have seen my friend when she was dead on her feet,and all a tremble because she was so tired,she says she often feels like the dormouse in Alice where it suddenly wakes up,and it has lost the plot.Does Ireland treat the condition with better understanding.Gemini54
Not really BUT patients have more power here than in the UK as there is no National Health Service and you can sack a dr without the consequences of doing that that there are in the Uk. kick one and they all limp

I was what they call a "peripatetic patient"when I lived in the Scottish islands. ie they have to take you on but after six weeks they can dump you and the health board has to reallocate you. By then I had succeeded in getting one dr to a tribunal, the first time in that region. also I had got myself off all meds including valium .. they were allocating me to islands with no connecting boat services eg one small plane a week; I was semi bedbound .

Utterly corrupt.

M.E is I think less stigmatised here and I use a dr only for what I need and I tell them what I need. They no longer control my income either! And I sort the M,E myself as they have not a clue and am very self sufficient. Three years ago I fell downstairs and as my foot was all colours and painful THEN I went to a and e and that was fine. But not for anything systemic; google has long been my friend and there are excellent support groups online also.

Don't give a damn what anyone thinks now. I KNOW they are wrong and just walk y and live my life
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Nippy
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25-06-2013, 06:58 PM
We have a town near us that is happy, clappy and very "alternative" where all the Mums were refusing to get their children immunised.
The situation got very serious there this winter, there was so many cases of measles because the children were being left at risk.
If the means are there to prevent disease, in dogs or children then I avail myself of them.
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Tang
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25-06-2013, 07:07 PM
Originally Posted by Pysces View Post
Playing devil's advocate, could it be that these medications are being withdrawn over safety issues? My Nan was on Vioxx (sp?) but it was withdrawn due to problems, so it's not always down to cost.

I'm not un-sympathetic - my husband has chronic pain because of Ankylosing Spondylitus in his spine and hips - he's just been taken off his regular pain medication because he's been on it so long (7yrs) it has damaged his kidneys and nearly killed him.
That is EXACTLY the sort of thing I was talking about. A lot of these type of pain drugs have been looked at closely again due to them causing worse problems (often fatal) than the ones they were prescribed for and because, after prolonged use, they were no more effective than paracetamol.
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Tang
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25-06-2013, 07:08 PM
Originally Posted by Rosebud77 View Post
[/B][/B]

Don't bet on that. The pharm industry is very corrupt in the UK and eg Viagra is available easily !

All that not on the NHS means is not free; private scrips will still be there as many drs will not agree.
I have no illusions re the NHS etc,
Leaving aside your non illusions. You didn't answer a single question I asked. WHERE did you hear this? Do you have a link to the source? What is the reason given?

*and what the feck this has to do with Viagra I'm sure I cannot fathom!
Or is that just another bit of 'sensationalism' thrown in?
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Tang
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25-06-2013, 07:11 PM
Originally Posted by Gemini54 View Post
The Drugs mentioned at meet and greet,excuse spelling
Phentanyl
tapentadol
gabapentin,I was on that but have changed to tramadol,a lot of people at the meet and greet out of 12 seem to be on that
subivo
others on injections Gemini54
Well that doesn't answer the question of where the official announcement is but ...

Tramadol is now often prescribed as a much SAFER alternative to a lot of the former destructive and addictive drugs used to alleviate pain.

Addiction to prescribed pain meds is a real problem.
And even more of a problem is the often fatal gastro intestinal conditions brought on by the continual use of them.
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Tang
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25-06-2013, 07:15 PM
I can only conclude (leaving aside 'stories' told) that some meds are being discontinued on SAFETY grounds and not, as you made it sound in your original post, because the NHS is not longer 'prepared to pay for them'.
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Rosebud77
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25-06-2013, 07:42 PM
Originally Posted by Nippy View Post
We have a town near us that is happy, clappy and very "alternative" where all the Mums were refusing to get their children immunised.
The situation got very serious there this winter, there was so many cases of measles because the children were being left at risk.
If the means are there to prevent disease, in dogs or children then I avail myself of them.
In Canada there is a serious outbreak of chickenpox among teenagers as the vaccine wears off. Like many childhood diseases it is not a serious matter in early childhood but in later life can cause eg sterility and is doing so.

When I was a child most of us caught eg measles and got over it and that gave lifelong immunity

There is nothing to be scathing about when people make their own decisions for their children. Alternative is often good. especially when many vaccines are potentially damaging
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