I am very sorry to hear this Jackie, my thoughts and prayers are with him and his friends & family. So very sad

What a beautifully thoughtful thing to think of getting some seed to entice the birds. I am sure he will appreciate your kindness and friendship.

Big hugs to you, it must be dreadfully tough seeing him go through this xxx

Thank you all very much

sorry i didnt update yestesday
i went to see John and came home to bed as i was abit down and upset

we put the seed out and within 15 mins there was 2 squirrels there eating

John is sleeping all the time again now
he gripped my hand tight when i kissed and spoke to him but he didnt open his eyes at all

i was a bit upset as he has had two alert days

have a hospital appoinment for myself at 10am then going to see John

will update later

here if you need to talk. still praying for you and john

hugs

sue

Good luck with the Hospital appt today.
Love to you and John.xx

Stay strong Jackie, we're all still thinking of you at such a sad time. He knows you're there, the way he held your hand, so you're his rock right now, but then you already knew that bit didn't you. I hope you can always be there for him until he slips away. Good luck with your own appt. we seem to forget about how important we are too when caring for others don't we, and I'm sure you're the same. xxxxxx

I'm thinking of you Jackie. I hope you find John comfortable when you see him today.

Thank you everyone so much



two bits of goodist news today

went for my hospital appointment and it is crunch time

i can either have a shunt put in, or i can have monthly lumber punctures

i am going back in 4 weeks to tell my neurologist what i want to do, i feel reliefed because he has been putting me off all these months trying me on different tablets

AND

went to see John, he was awake and spoke a few words to me he held my hand all the time i was there and was rubbing it, this has pleased me so much

i know he is not gonna get better and it is only a matter of time, but when he is so responsive towards me it makes me feel good inside

so yes i am today

Awww I'm so pleased he was awake for you Jackie, I can just imagine how you're feeling now

Thank you Helen

yes i am happy, although i know it will be short lived, the fact that we spoke and he knew i was there means so so much to me

I'm glad that John knew you were there it helps so much doen't it, and I am glad you seem to be making headway at the hospital.