Wishing you both the best of everything. Sure it will go well.

Hi everyone,
Just to let you know I was admitted for my transplant on 19th January. I had chemo for a week, then the transplant on 26th January, and I was discharged yesterday (13th February).

I kept my blog up to date (need to update for the past few days though) if you want a read.

http://heatherslymphoma.blogspot.com/

Just read your blog......So glad you're home now

Really hope this year is a better year for you now xx

Glad your home,
Onwards and upwards now xx

Glad you are home and hope you are feeling better and continue to improve, my sister in law has the same condition and i know i poorly she has been so i kind of know what you are feeling.

Lovely that you are home and really hope that 2011 is a good year for you and you just get better and better. xx

So sorry to hear your news. Hopefully the scan date will come through quickly, stay positive

Thanks everyone
Had my first checkup yesterday (have to go at least once a week to start with)
My bloods were really good, and everything seems to be going well so far!
I'm quite tired, but still managing Had to have an hours nap today, but apart from that, i've been ok

Brilliant news. xx

Hi Everyone,
Thought i'd better update this (and my blog), as I've not done for a while! (My blog has been updated a little).

I am now on Day 98 since the transplant, and everything is going well!
A week or so after coming home I was quite ill, and they tested me, and it turned out I had a mouth full of Coldsores! I couldn't eat or drink, or even talk, and I lost quite a bit of weight, and had to go on a fluid drip, but they upped my anti-viral medication to 800mg, 5 times a day, and it cleared it up (slowly).

I've been on weekly visits, and had a bone marrow biopsy at around day 30, which came back clear, and that me bone marrow was producing cells.
Still....more weekly visits, but the doctors being very pleased with my progress.
The main doctor said I was an example of how a transplant should go, and how recovery should be (some people get very ill )

My Ciclosporine levels (anti-rejection drug) have been up and down, rather than stable (should be 150, but mine have been as low as 34, and as high as 260!) but luckily doctors didn't seem too bothered, as I wasn't having any unwanted symptoms/side effects.

Last week, on day 89 I had a PET scan, and I got the results yesterday...........lets say they are good
No signs of the cancer that was there before my chemo at the end of last year!
My lungs are very scarred, and the is a lymph node under my right arm that is 'active', but it's not grown since my scan in December, so they aren't thinking it's cancer, just scarring really (as if it was cancer, it would grow). They also tested the 'donor cells' in my body, and these are at 100% - which is apparently great
I have another Bone Marrow Biopsy next Tuesday, and they are also going to take my Central Line out of my chest
I feel i'm on the road to being 'normal' again!

I'm still on weekly visits, until I am off my anti-rejection drugs, then I'll move to fortnightly, then monthly!
They will still keep a close eye on me, so lets hope my body has learned to fight cancer now, instead of accepting it's a 'normal' part of me!

I've developed GVHD (Graft versus Host Disease) - my skin is very flakey on my face and hands, and itches a bit, but they've given me steroid cream for that.....but developing GVHD isn't a bad thing, especially before day 100 - and i've only just developed it!
I can deal with dry skin (much like psoriosis (sp)).

Well, hope you got this far to hear my good news