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Location: Basingstoke, UK
Joined: Sep 2009
Posts: 351
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Thanks very much for the replies. I really appreciate knowing there are people here I can moan to when I've had enough of it all. When I was on the orthopaedic ward just recently they got to the point where they could even work out what I'd pressed my buzzer for before they got to my bed. I felt like I was just being a pain. The staff were fantastic though.
The poor lady in the bed opposite me made me feel better though as she had been there for over 12 weeks when I moved in to the bay with her and she had only just moved out of a side room having been in isolation for over 2 months amongst all sorts. She still has at least two operations and who knows what else to go, so at least I wasn't too bad!
I just get a tad fed up with having to live with a body that just doesn't function like one should and half the time no on can tell me why it doesn't or what is wrong, so I end up with "we don't know". My personal 'pharmacy' is now at around 14 drugs and I'm taking upwards of 30 pills a day!!
I currently have diagnoses of fibromyalgia, CRPS/RSD, spondylolisthesis, scoliosis, kethosis (?sp), hypertension, asthma, depression, PTSD, a bladder that just doesn't work (actually the consultant said "it's totally knackered"), a nervous system that does random things at random times, migraines, tension headaches, cluster headaches, TMJ dysfunction, some version of slack ligaments meaning my joints disclocate, some irregularity with my periods (not had one for 19 months now), insomnia and I can't think of anything else at the moment.
I really think a new body is in order. I am thinking of treating myself to a wheelchair for getting out and about when I am not up to walking because of pain (the nhs ones are horrible and hell to push) and I am about to order a nice walking stick to replace the nhs issue brown wood version!
I just need a break I think. I hate hospitals. I worry about my other half being on his own cos he's not particularly self-sufficient (he's completely blind and no one ever bothered to teach him to cook or clean or anything) and Poppy has shot up 2 inches while I've been in hospital (she's 15 weeks old now, 11 inches tall but skinny as anything!) and missed a load of training and socialisation opportunities.
Ah well, there's always someone worse off than I am so I guess I can remind myself of that. At least I have a husband that loves me and friends I know I can rely on and Dogsey and the fab folk here.
Thanks again everyone. You've really cheered me up and made me feel better!
Ali xx